{"id":4114,"date":"2026-01-29T02:21:06","date_gmt":"2026-01-29T02:21:06","guid":{"rendered":"https:\/\/bihavadis.com\/?p=4114"},"modified":"2026-01-29T02:21:06","modified_gmt":"2026-01-29T02:21:06","slug":"kas-hastasi-isvecli-cocuk-turk-vatandasligina-gecti","status":"publish","type":"post","link":"https:\/\/bihavadis.com\/index.php\/2026\/01\/29\/kas-hastasi-isvecli-cocuk-turk-vatandasligina-gecti\/","title":{"rendered":"Kas hastas\u0131 \u0130sve\u00e7li \u00e7ocuk T\u00fcrk vatanda\u015fl\u0131\u011f\u0131na ge\u00e7ti"},"content":{"rendered":"
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Annesi T\u00fcrk olan ve \u0130sve\u00e7\u2019te ya\u015fayan kas hastas\u0131 bir \u00e7ocuk, tedavisi i\u00e7in gerekli olan ilac\u0131n \u0130sve\u00e7 H\u00fck\u00fcmeti taraf\u0131ndan kar\u015f\u0131lanmamas\u0131 nedeniyle doktorunun arac\u0131l\u0131\u011f\u0131yla T\u00fcrkiye\u2019ye ba\u015fvurdu.<\/p>\n

7 ya\u015f\u0131ndaki hastan\u0131n, annesinin T\u00fcrk olmas\u0131 nedeniyle T\u00fcrk vatanda\u015fl\u0131\u011f\u0131na ge\u00e7erek tedavisine ba\u015flad\u0131\u011f\u0131n\u0131 belirten Prof. Dr. Topalo\u011flu, “\u0130sve\u00e7 ki zengin bir \u00fclke, n\u00fcfusu da az ancak bu ilac\u0131 ge\u00e7en haftaya kadar tan\u0131m\u0131yordu” <\/strong>dedi.<\/p>\n

MECL\u0130S ARA\u015eTIRMA KOM\u0130SYONU\u2019NDA KONU\u015eTU<\/span><\/b><\/p>\n

\u00c7ocuk Sa\u011fl\u0131\u011f\u0131 ve Hastal\u0131klar\u0131 \u00c7ocuk N\u00f6rolojisi Bilim Dal\u0131 Ba\u015fkan\u0131 Prof. Dr. Haluk Ayd\u0131n Topalo\u011flu, ALS, SMA, DMD, MS hastal\u0131klar\u0131nda ve kesin tedavisi bilinmeyen di\u011fer hastal\u0131klarda uygulanan tedavi ve bak\u0131m y\u00f6ntemleri ile bu hastal\u0131klara sahip ki\u015filer ve yak\u0131nlar\u0131n\u0131n ya\u015fad\u0131klar\u0131 sorunlar\u0131n ve \u00e7\u00f6z\u00fcmlerinin belirlenmesi amac\u0131yla kurulan Meclis Ara\u015ft\u0131rmas\u0131 Komisyonu’nda konu\u015ftu. Topalo\u011flu, zengin \u00fclkelerde dahi bu t\u00fcr hastal\u0131klar\u0131n ila\u00e7lar\u0131n\u0131n devlet taraf\u0131ndan kar\u015f\u0131lanmad\u0131\u011f\u0131n\u0131 ya da belli bir ya\u015fa kadar geri \u00f6deme kapsam\u0131na al\u0131nd\u0131\u011f\u0131n\u0131 bildirerek bir\u00e7ok \u00fclkede bu ila\u00e7lar\u0131n \u00e7ok pahal\u0131 oldu\u011funu s\u00f6yledi.<\/p>\n

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\u0130SVE\u00c7’TE ALAMIYORDU, T\u00dcRK OLARAK ALIYOR<\/b><\/p>\n

Topalo\u011flu, \u0130sve\u00e7\u2019in d\u00fcnyan\u0131n en zengin \u00fclkeleri aras\u0131nda oldu\u011funu, buna ra\u011fmen genetik ge\u00e7i\u015fli bir kas erimesi hastal\u0131\u011f\u0131 olan ‘Duchenne Muscular Distrofi’ (DMD) ilac\u0131n\u0131 ge\u00e7ti\u011fimiz haftaya kadar kar\u015f\u0131lamad\u0131\u011f\u0131n\u0131 kaydetti. Topalo\u011flu, bu hastal\u0131\u011f\u0131n tedavisinde kullan\u0131lan ilac\u0131n pahal\u0131 oldu\u011funu, 6-7 ya\u015f\u0131ndaki bir \u00e7ocuk i\u00e7in ayda 20 bin Euro \u00f6deme yap\u0131lmas\u0131 gerekti\u011fini vurgulayarak,\u00a0“\u015eimdi, T\u00fcrkiye bunu kar\u015f\u0131l\u0131yor, bu \u00e7ok g\u00fczel bir \u015fey. T\u00fcrkiye d\u00fcnyada bu ilac\u0131 tan\u0131yan 2\u2019nci veya 3\u2019\u00fcnc\u00fc \u00fclkeydi. \u0130sve\u00e7 zengin bir \u00fclke, n\u00fcfusu da az ancak bu ilac\u0131 ge\u00e7en haftaya kadar tan\u0131m\u0131yordu. Bana \u0130sve\u00e7li bir doktor arkada\u015f\u0131mdan telefon geldi; ‘Burada bir \u00e7ocuk var, babas\u0131 \u0130sve\u00e7li, annesi T\u00fcrk. Biz bu ilac\u0131 veremiyoruz, sen verebilir misin?’ Ben de ‘T\u00fcrkiye Cumhuriyeti kimli\u011fi varsa veririz’ dedim. Aile T\u00fcrkiye’ye geldi, bir ay i\u00e7inde kimli\u011fi \u00e7\u0131kt\u0131 ve \u00e7ocuk ilac\u0131 al\u0131yor T\u00fcrk vatanda\u015f\u0131 olarak. Ama \u0130sve\u00e7li olarak alam\u0131yordu bu ilac\u0131”<\/strong> diye konu\u015ftu.<\/p>\n

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\u0130sve\u00e7\u2019in kar\u015f\u0131lamad\u0131\u011f\u0131 DMD ilac\u0131n\u0131 alamad\u0131\u011f\u0131 i\u00e7in tedavi olamayan \u00e7ocu\u011fa, Sa\u011fl\u0131k Bakanl\u0131\u011f\u0131 el uzatt\u0131.<\/p>\n","protected":false},"author":1,"featured_media":4115,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[242,726,577,295,517],"class_list":["post-4114","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-saglik","tag-cocuk","tag-isvec","tag-tedavi","tag-tur","tag-turk"],"_links":{"self":[{"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/posts\/4114","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/comments?post=4114"}],"version-history":[{"count":1,"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/posts\/4114\/revisions"}],"predecessor-version":[{"id":4118,"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/posts\/4114\/revisions\/4118"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/media\/4115"}],"wp:attachment":[{"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/media?parent=4114"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/categories?post=4114"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/tags?post=4114"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}