{"id":83730,"date":"2026-05-05T00:30:06","date_gmt":"2026-05-05T00:30:06","guid":{"rendered":"https:\/\/bihavadis.com\/?p=83730"},"modified":"2026-05-05T00:30:06","modified_gmt":"2026-05-05T00:30:06","slug":"bursada-4-yasindaki-ibrahimin-kelebek-hastaligi-hayatini-zorlastiriyor","status":"publish","type":"post","link":"https:\/\/bihavadis.com\/index.php\/2026\/05\/05\/bursada-4-yasindaki-ibrahimin-kelebek-hastaligi-hayatini-zorlastiriyor\/","title":{"rendered":"Bursa\u2019da 4 ya\u015f\u0131ndaki \u0130brahim\u2019in &#8216;kelebek hastal\u0131\u011f\u0131&#8217; hayat\u0131n\u0131 zorla\u015ft\u0131r\u0131yor"},"content":{"rendered":"<p>Bursa&#8217;n\u0131n Nil\u00fcfer il\u00e7esinde ya\u015fayan Eylaf Nour\u2019un o\u011flu \u0130brahim, do\u011fu\u015ftan Epidermolizis B\u00fclloza (EB) hastas\u0131. Halk aras\u0131nda \u201cKelebek hastal\u0131\u011f\u0131\u201d olarak bilinen bu nadir hastal\u0131k, cildin a\u015f\u0131r\u0131 hassas ve yaral\u0131 olmas\u0131na yol a\u00e7\u0131yor.<\/p>\n<p>D\u00f6rt y\u0131ld\u0131r ila\u00e7 tedavisi g\u00f6ren \u0130brahim\u2019in durumu, aile ekonomik zorluklarla kar\u015f\u0131 kar\u015f\u0131ya kal\u0131nca daha da kritik hale geldi. E\u015fi i\u015f bulmak i\u00e7in yurt d\u0131\u015f\u0131na giden, kiray\u0131 \u00f6deyemedi\u011fi evden \u00e7\u0131kar\u0131lan Eylaf Nour, hasta o\u011flu ve 7 ya\u015f\u0131ndaki k\u0131z\u0131yla yak\u0131n\u0131n\u0131n evinde ya\u015fam m\u00fccadelesi veriyor.<\/p>\n<p><img decoding=\"async\" src=\"https:\/\/bihavadis.com\/wp-content\/uploads\/2026\/05\/bursada-4-yasindaki-ibrahimin-kelebek-hastaligi-hayatini-zorlastiriyor-0-VrlaGfYU.jpg\"\/><\/p>\n<p><strong>AYLIK 100 B\u0130N L\u0130RALIK MASRAF, A\u0130LEY\u0130 ZORLUYOR<\/strong><\/p>\n<p>\u0130brahim\u2019in tedavi ve t\u0131bbi malzeme masraflar\u0131 ayl\u0131k yakla\u015f\u0131k 100 bin liray\u0131 buluyor. Ancak bor\u00e7 alacak kimse kalmayan aile, gerekli ila\u00e7 ve malzemeleri kar\u015f\u0131lamakta g\u00fc\u00e7l\u00fck \u00e7ekiyor. V\u00fccudunu saran yaralar nedeniyle k\u00fc\u00e7\u00fck \u0130brahim k\u0131yafet giyemiyor ve s\u00fcrekli a\u011fr\u0131 \u00e7ekiyor.<\/p>\n<p>Debra Kelebek \u00c7ocuklar Derne\u011fi T\u00fcrkiye Temsilcisi Adem Aky\u00fcz, ailenin \u00e7aresiz oldu\u011funu belirterek yard\u0131m \u00e7a\u011fr\u0131s\u0131nda bulundu:<\/p>\n<p>\u00c7ocu\u011fun durumu a\u011f\u0131r ve bak\u0131ms\u0131zl\u0131k hastal\u0131\u011f\u0131n\u0131 ilerletiyor. Aile hem maddi hem manevi olarak olumsuz etkileniyor. Bu y\u00fck\u00fcn bir an \u00f6nce hafifletilmesini rica ediyoruz. Hastal\u0131k zamanla i\u015fkenceye d\u00f6n\u00fc\u015febiliyor.<\/p>\n<p><img decoding=\"async\" src=\"https:\/\/bihavadis.com\/wp-content\/uploads\/2026\/05\/bursada-4-yasindaki-ibrahimin-kelebek-hastaligi-hayatini-zorlastiriyor-1-RuERiMFI.jpg\"\/><\/p>\n<p><strong>YARDIM \u00c7A\u011eRISI<\/strong><\/p>\n<p>Ailenin ve \u0130brahim\u2019in zorlu ya\u015fam ko\u015fullar\u0131, toplumun ve yetkililerin deste\u011fini bekliyor. Dernekler ve yard\u0131m kurulu\u015flar\u0131 arac\u0131l\u0131\u011f\u0131yla k\u00fc\u00e7\u00fck \u0130brahim\u2019in ila\u00e7 ve t\u0131bbi malzeme ihtiyac\u0131n\u0131n kar\u015f\u0131lanmas\u0131 hayati \u00f6nem ta\u015f\u0131yor.<\/p>\n<p><img decoding=\"async\" src=\"https:\/\/bihavadis.com\/wp-content\/uploads\/2026\/05\/bursada-4-yasindaki-ibrahimin-kelebek-hastaligi-hayatini-zorlastiriyor-2-mVFjLBgs.jpg\"\/><\/p>\n<p><img decoding=\"async\" src=\"https:\/\/bihavadis.com\/wp-content\/uploads\/2026\/05\/bursada-4-yasindaki-ibrahimin-kelebek-hastaligi-hayatini-zorlastiriyor-3-brx3dysc.jpg\"\/> <\/p>\n<div> <span><strong>Kaynak:<\/strong> Demir\u00f6ren Haber Ajans\u0131 (DHA)<\/span> <\/div>\n","protected":false},"excerpt":{"rendered":"<p>Bursa&#8217;n\u0131n Nil\u00fcfer il\u00e7esinde ya\u015fayan Eylaf Nour\u2019un o\u011flu \u0130brahim, do\u011fu\u015ftan Epidermolizis B\u00fclloza (EB) hastas\u0131. Halk aras\u0131nda \u201cKelebek hastal\u0131\u011f\u0131\u201d olarak bilinen bu nadir hastal\u0131k, cildin a\u015f\u0131r\u0131 hassas ve yaral\u0131 olmas\u0131na yol a\u00e7\u0131yor. D\u00f6rt y\u0131ld\u0131r ila\u00e7 &#8230;<\/p>\n","protected":false},"author":1,"featured_media":83731,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[11],"tags":[250,467,2132],"class_list":["post-83730","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-saglik","tag-aile","tag-hasta","tag-ibrahim"],"_links":{"self":[{"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/posts\/83730","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/comments?post=83730"}],"version-history":[{"count":1,"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/posts\/83730\/revisions"}],"predecessor-version":[{"id":83736,"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/posts\/83730\/revisions\/83736"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/media\/83731"}],"wp:attachment":[{"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/media?parent=83730"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/categories?post=83730"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/bihavadis.com\/index.php\/wp-json\/wp\/v2\/tags?post=83730"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}